We are used to looking for trends in our kids with special needs. With the others, there seems to be a trigger (barometric pressure, full moon, who knows...) that sets behaviors off course. And then just as instantly, things calm down. With Isaac that is a day to day reality..even an hour by hour reality...his health and comfort level change quickly and dramatically and so we need to prepare for anything.
He is such a joy in all of our lives. We could not be enjoying him more. Sometimes I just wish that life could get easier for him..it is hard to watch. And yet I know with certainty that Isaac is safely in the palm of his Creator's hand-and He is good all the time.
julie, I have been following your family's story for some months. I so admire your commitment to adoption and your strength in dealing with your children's health conditions. My baby boy was diagnosed with cancer at 7 months and we have been fighting his battle for about 18 months now - so we have some understanding of the struggle in caring for complicated medical cases. When I saw Issac's hand today - in case, possibly, it would help him and you weren't aware of it - have you or your doctors considered using Acyclovir as a preventative or treatment for Herpes outbreaks? You may already be using it or have rejected the idea based upon his complicated medical needs - but my son has been on prophylactic acyclovir for more than a year post bone marrow transplant with very few side effects. Hope you don't mind this comment - obviously, you know best. I'll pray for him! Emily (emilyjanmarsh at yahoo dot com)
ReplyDeleteI will pray for isaac mum.I know God is our healer.He sent his word to heal our diseases.As a family be strong and know that the work you are doing God only can pay you.
ReplyDeleteOuch, his hand looks painful! Bless you all, Julie. I'm praying for little Isaac. I'm so glad he has his dear family right now.
ReplyDeleteBrenda Fischer
Poor little Issac. I hope that they find something that can make him comfortable.
ReplyDeleteHe is such a little ham and should only smile .
I wish you all the strength to keep up your positive attitude. More power to you and keep the faith.
Tabea
I am praying for Isaac and you and your whole family. Praying God continues to give you strength and grace. You are an amazing mommy.
ReplyDeleteIt was great to meet you last weekend. God bless you Julie.
- Janelle (Barb's friend)