or...the MRI that wasn't. After getting a pre-op physical last week and spending a couple of hours getting Maisy ready to go under anesthesia for her MRI, we discovered that she can NEVER have an MRI because she has a Pacemaker. Yet another reason why it can be difficult to enter a child's world when we were not there from the beginning. Maisy has so much going on that not only us, but the geneticist that ordered the test, the pediatrician that did the pre op and the radiology nurse almost missed it. The information we have received about her pacemaker was complete but it is just not the same as it is when a child has a parent at their bedside hearing all the details and implications of a particular condition. We are so thankful that at the last minute, someone caught the mistake. It could have been tragic.
So, we are left with more questions than answers about the syndrome that might explain Maisy's medical issues. I really wanted to get an answer...to have the name of a syndrome that could give us a picture of what the future may hold for her. I am reminded that the kind of answers that I want will never be found here on earth. Her future is not in the hands of the doctors and the tests that we seek can only give us a piece to the puzzle that will not be completed in this life. The intricate details are laid out so clearly before our Father in Heaven. He knows. He cares. He is in control...and I am so thankful for that.
So, this interruption of plans and lack of answers at this time serves as a good reminder to me to hold on to the one who does have the answers...and he will give us the information that is needed in his own timing.
