Friday, March 26, 2010
I so wish that after three weeks with Isaac that I could say I have a good understanding of him..but I don't. We are waiting to get into the gastroenterologist, pulmonologist, infectious disease specialist, and neurologist in the the next two weeks. We have only seen the pediatrician so far..and this little guy is in need of specialists that can help us figure out what is going on with him.
We have been treating him for aspiration pneumonia this week. The augmentin is causing lots of diarrhea which has added to his discomfort. We have switched him to a GJ tube, changed his formula, added a farrell bag that helps release the air from his stomach. While he seems to be doing better, he is still having difficulty with his feedings and discomfort. When he is feeling well, Isaac is so happy. He smiles and coos and delights in the attention he gets.
But, when something doesn't not feel right in his body, Isaac arches and screams and holds his breath. His oxygen levels drop very low when he cries and it very concerning.
On a good day, or a good hour, he is so content. But, that can change in an instant. The poor little guy...it is so hard to watch him so uncomfortable. The family has all adjusted well to his arrival and the other kids are enjoying him.
Isaac's foster mom did an absolutely amazing job with him. Her dedication and commitment to this child is so apparent...without a doubt, he has been meticulously cared for. She saw him as God does...a precious child of infinite value...one that that she so willingly sacrificed her sleep, her own needs to care for. We will forever be grateful for the care he received in Alabama..and will always be amazed at the incredible ministry that Isaac's foster mom has had for the last 28 years. What an inspiring servant of her precious Lord.
Isaac is a medically complex child to say the least...he takes one of us to commit our full attention to at all times. The reality that we may never sleep through the night again without getting up to give a medicine or neb is a bit overwhelming. But with each day he is with us, I know 100% that God is standing right alongside us giving us the strength just as he gave Isaac's foster mom.
He is our son...there is no doubt of that. And I consider it a privilege to be able to care for him for the rest of my days on earth. I am just so thankful that I don't have to rely on my own strength to care for him...I would have already failed by now..It is only of God that we are able to renew our strength to push forward. I don't know why He has chosen this life for me, I know that it is in our weakness that his power is made perfect...and it is my prayer that it will be in my weakness, that He will make his strength and sovereignty known to others.
Please pray for Isaac and for the upcoming doctors visits...and that there may be solutions for some of the issues that he is facing. We know that it is God who knows his little child the best and we are praying that he will direct us to the answers we need right now.
at 10:12 PM