I have had 8 of the most amazing hours with Isaac. He has been happy and content all day. He loved his infant massage time, his occupational therapy session and all of his snuggle time with mom. I really believe the herpes outbreak on his hand triggered this horrible neurological episode. The herpes is calming down and the meds are getting adjusted well.
We are feeling really comfortable with the team that we have chosen for his care. We are done with doctors who only want to talk about his body shutting down and how things are going to continue to get worse. We are looking forward to the future with Isaac whatever that may hold. The doctors we love are the ones who fully know what the course of things may be, but aren't stuck there..and will help us to deal with things as they come. There are some really great doctors out there and I think, we have found some of the best.
I remember when we sat in the obstetrician's office 18 years ago, before McKenna was born. We were told that she had a birth "defect" and that she would most likely die. And if she survived, she would struggle the rest of her life. From that moment, my attachment to this little girl who needed our care so much was carved in stone. Having been so close to losing her and watching her have to work so hard in life, my bond to McKenna has always been strong. These past weeks with Isaac have brought out all the fight I've been given to advocate for his needs. I know that God is using this struggle to provide that instant super glue kind of bond that I so desire.
So, God is working in so many ways through this experience. I am amazed as He is showing us some of the blessings He has planned for us. I have so many opportunities to share why we adopted this little boy. People are often curious when you have adopted a child..but they look for even deeper answers when they want to understand why you would adopt a baby who has a history of inconsolability and catastrophic brain damage. That is not something we had thought much about when we followed God's leading in bringing Isaac home. This little boy is making a difference in this world not only with his big brown eyes, longs eyelashes and incredible spirit, but with his struggles and his disability. God is good...all the time.