This is what the herpes looks like today on Isaac's hand--the blisters have actually gone down in size today. His pneumonia is now downgraded to bronchitis but he is still requiring oxygen. Despite all of this, he had a really smiley, interactive day yesterday. Today is a different story...
We are used to looking for trends in our kids with special needs. With the others, there seems to be a trigger (barometric pressure, full moon, who knows...) that sets behaviors off course. And then just as instantly, things calm down. With Isaac that is a day to day reality..even an hour by hour reality...his health and comfort level change quickly and dramatically and so we need to prepare for anything.
He is such a joy in all of our lives. We could not be enjoying him more. Sometimes I just wish that life could get easier for him..it is hard to watch. And yet I know with certainty that Isaac is safely in the palm of his Creator's hand-and He is good all the time.
