But, most everything about Maisy Grace is very rare. At our last doctors visit, the neurosurgeon and the craniofacial doctor reminded us that Maisy's skull was very abnormal. One of the doctors noted "Her skull is very abnormal and we see abnormal skulls!" The skull bones are brown in color are very thick. They have talked about removing her forehead bone (she will have an incision from ear to ear), reshaping it and then placing it back. They will use dissolvable screws and plates to put things back together again. It is extensive and she will require a blood transfusion during the surgery. Because she has had many transfusions with all the past procedures, it is more difficult to find a match for her. Her body develops antibodies and so cross matching is very important.
I can't help but to marvel at God's design for our bodies. Did you know that our skulls do not grow, but instead, the brain grows and pushes the skull out? Eventually, when the brain is done growing, the skull fuses together. Maisy's body has been designed by God for a special purpose..and we have only seen the beginnings of what God is going to do with this amazing little girl and the story of God's faithfulness that she will have to share.
So this week, we are going to sing more "itsy bitsy spider" and "twinkle twinkle little star." We are going to play outside and jump on the trampoline all we can, and we are going to celebrate all the moments we have been given together. And as we feel waves of anxiety crop up within our hearts, we are going to place our precious girl into the hand of the Creator who knit her together in her mother's womb and destined her to be a ray of sunshine in our family.
So please pray for our sweet Maisy. I will keep you updated.