Decannulation plans on hold...

Tomorrow was to be the day that Maisy would have had her trach removed...until the pneumonia set in. She went in today for a repeat chest x-ray and the right lung looked worse than it did on Friday despite being treated with antibiotics and tobi  nebs. Maisy has been needing oxygen overnights to help her breathe--something she hasn't needed for the past year. I don't remember the last time she had pneumonia--especially in the middle of summer. I was glad that there wasn't really even a decision to make---the pneumonia decided for us. And we are trusting that God's timing is perfect in this situation. He had the plans laid out for her life long before we stepped in. I am thankful that he has given us clear guidance in all of this.

Tomorrow is July 13th. It is the 4 year anniversary of Evan's death. Maisy's procedure would have been at the same hospital, at the same time that Evan passed away. When surgery was originally scheduled that day, I prayed that God would give us peace and comfort as we faced this day that would have been filled with so much emotion. He saw it fit to change that day. And we will trust that his timing is perfect.

So, we will wait a month or so and try and schedule again. We prayed that God would direct every aspect of Maisy's health care and the decisions we are asked to make as her parents.  It is so easy to want to run ahead of Him having been wrapped up in all the amazement we have felt as we have witnessed all the healing that has taken place in Maisy's life in the past year. How disastrous that could be.  He has been faithful in His own time, in His own way....and we will wait upon him to direct our next steps.

And as we wait, we will praise Him for his guidance and faithfulness...and enjoy our sweet little girl.