To God be the glory...

Maisy checking her own vital signs--she knows more about
medical procedures than most adults!

Getting ready to go into the OR  with Daddy

Almost ready for decannulation...

The big moment!

What a day! Maisy did well through the early morning bronch/laryngoscopy.  Unfortunately, they had to remove some scar tissue in her upper airway and subsequently gave her an IV pain med. Maisy does not tolerate these pain meds and she became very agitated. We had to wait until late afternoon to proceed with the decannulation until the meds wore off.

The decannulation went very well. I was able to remove her trach. Maisy tolerated it very well. She didn't know what to think but she showed no signs of distress and she seemed to handle this new way of breathing without skipping a beat. We brought her to a mirror so that she could see that the trach was no longer there. We heard words that she had never spoken before. It was an amazing experience to watch her adjust to this big step in her life...and she handled it so well. If all goes as planned, she will still have a  hole where the trach was until the end of September when the doctor will go back into the operating room and close it surgically. She is an amazing little girl with an even more amazing God...


To God be the glory, great things He has done...
Those words have never been more descriptive of how I have felt these last days.  He could have chosen many paths for Maisy's life...God could have started out forming Maisy's little body just as most of ours without need for radical intervention from the medical community. He could have placed her in a family that was able to care for her needs right from the start. But, in his infinite wisdom and grace,  He had a different plan...a different mission for her.

And she has accepted her mission well. I have had few words to describe how I have felt over the last weeks preceding this day. When I have no words, it is most often because of an undeniable sense that God is moving, working....being glorified right before my eyes.  He could have chosen to be glorified without a precious healing of her airway and lungs like he has...she still has so many obstacles to face. But, today, we rejoice..because He has truly shown us a miracle. And there is no better place this side of heaven, than to be the witnesses of such an amazing sign of wonder and grace....