|Can't beat a warm day of playing in the snow...but with the temps getting really cold, I am glad to be heading out of town!|
Tuesday, February 8, 2011
at 9:32 PM
It made me so sad..I don't know why..
In a way, I felt defeated...and exhausted. I couldn't stop the tears from rolling down my face as I filled out the medical history forms in the waiting room. As if could summarize a lifetime of medical care on a two sided form..that no one was going to read thoroughly or understand fully anyway. Instead, they would see a disabled adult, not my child. From before she had taken her first breath, I tried to so hard to get her the best of care. But, now, I just settle for what her medical assistance will pay for? Do we just go to the doctor with the next available appointment? Her health needs are just as specialized at before--only her chronological age has changed..nothing else. Eighteen years of assembling the medical dream team, and now the big game is over, it seems. I suppose I am feeling the way athletes do after the crowds go home and the stands are empty. Life goes on for everyone else. But, the game isn't over for us as McKenna's parents..it is just beginning in many ways...and we will learn to navigate the system again like we did 18 years ago.
at 6:52 AM