|The pictures were taken in the fall at the FASD (Fetal Alcohol Spectrum Disorder) family retreat we attended through MOFAS.|
The long and winding (did I mention expensive and tiring!) road to independence...
It is 5:50 am...in the land of neuro-atypical brains..aka...our house.
Our 16 year old leaves for school at 6:30am. She been up since before 4 am to get ready. She went to sleep at 11:30 pm. She wants to make sure that she doesn't miss the bus. The good..she she is not going to miss the bus and she actually got up. The bad...her sense of time is so out of sync. It is difficult for her to judge how much time she will need. And she has no concept of how long something will take. Something we take for granted.
And in the process, McKenna woke up also. Her road to "independeck" is usually heartwarming...not so heartwarming at 5 am. She has only one volume to her voice...loud. Within 10 feet of our bedroom lies...not one, but 4 children six and under. McKenna wants to make her own breakfast, she announces. She asks if we have any bagels left. I am so glad to be able to tell her that I just bought some yesterday.
But she had already threw them all out. She broke them.
What can I say to that...she is attempting to be "independeck" and that is great. But, now there are no bagels..
And the chain reaction begins...I bought the bagels with Kaden in mind and by 5:15 am, he was screaming for bagels.
The parrot, aka Maisy, is now sitting in her bed yelling for bagels...
Elijah is chanting "Is it sunny or cloudy or snowy?" over and over..no Elijah--it is still dark
Isaac Robert is wretching because that is the usual alarm clock sound around here...no snooze button on that boy. He gets up so early, I call him "Farmer Bob.."
And so here I am, writing a blog post at 5:50am as we are suppose to be heading out the door to an all day FAS evaluation..for, you guessed it, the only child that is not awake. The one who was suppose to be ready to leave with me!
I have a lot to be thankful for on this road to independence (or maybe I should call it "the road to less dependence." Might as well laugh along the way...