Sunday, August 21, 2011

Day +23: hard work

It's hard work to grow cells. Elijah looks pretty tired today. During the night, the nurses have medication to administer at least once an hour. Vitals are every four hours unless he needs a transfusion. Last night, he needed a red blood cell transfusion which involves lots of monitering and disruption through the night. So, for the second night in a row, neither of us were able to get much sleep.

He is tired, but his cells are still growing slowly but steadily. There will be ups and down...the counts will most likely vary from day to day. The doctor said today that it will take about another three weeks for things to get more stabilized. He has been an inpatient for 34 days already...it really has gone by fast. God has been so good to us...despite such lack of sleep, we can feel God's mercies renewed each morning. He just had a dressing change...that is very upsetting to him..he gets through it with tears streaming down his face..and then afterward, he sobs. My heart aches as I hold him tight and caress his bald head...and tell him it's going to be okay. He recovers quickly but all of his energy is drained from the struggle. I am praying he sleeps well this afternoon..his little body needs the sleep.

 In the day that I called, you answered me. You encouraged me with strength in my soul. Psalm 138:3
University of Minnesota Amplatz Children's Hospital


There is strength in my soul. There is strength in Elijah's soul..God is telling a story through Elijah's life..and it has a good ending....because God has written it.  His body is weary, but his soul is renewed with strength and comfort.

 I would rather be here in this hospital room
with this little boy..
 and with a God who is worthy of our trust..
who is worthy of our praise..
who catches all of our tears..
hears all of our cries..
and renews  our strength...

I would rather walk through the valley with my God
than live a moment without Him.
Suffering and death appear to be our enemy....
 in the end they are our friend.
For it is in the moments when
 we have no strength of our own...
 no hope to hang on to..
no more tears left to cry...

that the purest of truth
is revealed so clearly.
Our home is in the Lord..
Our hope is in the Lord..
and He will work all things together
 for his good...

I would rather be here within
His perfect will
than anywhere else on earth.


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