Friday, August 26, 2011
Elijah has a rash all over his body. His cough seems to doing better but he does have a fever again. The rash for GVH (graft vs. host) usually begins on the palms of the hands...Elijah's did not. I think he is reacting to something, but we haven't narrowed down what that might be. He is not itchy and doesn't seem to notice the rash at all. He is starting to wean down on his pain and nausea meds. Once the counts start coming in, the pain and nausea usually subside. He is doing so well. And for now, it appears that there is no GVH!
Yesterday he had a good day with my sister while Mark and I took the older girls to the State Fair. We had a great time. Hope sang Karaoke...she is so brave! There was a big crowd to perform in front of and she did it!! She sang beautifully and it was so fun to watch her, nervous as she was, conquer her fears and use her God given talents. What a gift she is to us. Kenna was a trooper walking all across the fairgrounds with no complaints...there was a lot of walking and she really have a good time. It was a welcome break to have some time with the girls before they start school again.
My mind has turned to mush. It's official. My whole sense of time has been muddled. Nurses will come in with questions like, "When did Elijah start on the steroid cream?" or "Who came in to bring him his Neb?" Those answers would have always been easy to answer..my memory for those details is strong. But, now, I can't remember names, events, and definitely times of when anything happened. Even this is a gift...It gives me compassion for those whose who struggle. Some good nights of sleep and a change of scenery for me will most likely cure the temporary state of mind I am.
There are so many people who struggle with memory issues, with information retrieval, like many of my children. It is uncomfortable when you can not access information that you know is tucked in there somewhere. There are times when I know the information that is being asked for never even made it into my brain. It makes me frustrated as I try and struggle to come up with an answer...Each time I feel this way, I am given a glimpse inside the world of those who struggle with cognitive impairments or information processing disorders...each time I receive a lesson in compassion. I do not want to take my memory for granted...it is gift. And I will give praise to the giver of that gift...
at 8:52 AM