AMAZING NEWS!

The bone marrow biopsy results came back and Elijah's blood and bone marrow cells are 100% donor cells! This is amazing and even better than expected...What great news!!

The results of the CT scan showed that he still has persistant sinusitis, but his lungs looked clear. They are running more tests to try and figure out the cause of the ongoing fevers and rashes. Meanwhile, they have added new antibiotics to try and treat the sinuses.

He did very well through sedation and the CT scan. Nothing much keeps him down for long.

We are overwhelmed with thankfulness and praise for the miracles that are happening within Elijah's body! God is healing his body while  he has blanketed him with peace through it all.

Time to celebrate!

School Pics

School pictures and special needs don't mix well. Each year I try and get pics around the first day of school to avoid the costly lifetouch disaster that usually occurs. A week earlier, I told everyone to get their first day of school outfits on and we took some shots. They cooperated really well and I love the way they turned out. Kaden was sitting on top of Tyler's car...that is why he has that enormous grin...otherwise he spent the evening obsessing over the bugs...but the thought of laying on top of the car made this photo shoot much more appealing...
These pics make life at the Martindale house look so put together...awww...that makes me laugh!

Day 33: Quick Update



Today his rash looks better than it has the last several days. This picture doesn't capture how purple and profuse the spots still are...



When I arrived back at the hospital yesterday morning, I was surprised to see how swollen Elijah's face had become. Even his ears were huge! Mark had told me that he was really swollen but I really thought it was just the swelling that had started weeks ago. Boy, was I wrong! This morning, we are getting ready to go down for a CT scan of his sinuses and lungs. He will require sedation again...but I am thankful that they listened to me instead of attempting it again with out any. Every two weeks around here the doctors and fellows change, and so we are soon to be on our fourth set of doctors seeing him. Each time the staff changes like that, it sets us back a bit because they may know the medical "facts" of his case but they don't understand the softer side of his care... Like the fact that he really can not make it through a CT scan without sedation and that even if he says he feels "perfect", that may not be the case.

He was pretty miserable the last two days. This morning he seems to be a bit perkier. Praying for a more comfortable day for him...There is no more talk of a discharge plan at this point.

Did I mention what a sweetheart he is?