Communication in all forms is vital. I have had a chance to observe different communication styles by so many different hospital staff people as they constantly stream through our room. Even the written signs throughout the hospital strike me as funny...awww...when you spend 9 weeks at a hospital day and night, there are many things that entertain you that you may otherwise not have paid any attention to....like these signs:
Monday, September 19, 2011
His fevers have been gone for several days! He remains in isolation because of the adenovirus. If all goes as it is now, we could be transitioning to the apartment by the end of the week. There are two issues that need to be addressed..
The second issue is his kidney function. Because of the continued sinus problems, they started him on one last broad spectrum antibiotic, vancomycin. He has been on this IV antibiotic before without any problems. But, because he is on cidofovir to treat the adenovirus, his kidneys don't seem to be able to flush the vanco out of his system well enough. the cidofovir is hard on the kidneys and Elijah's blood tests are showing the stress on his them. His creatinine levels are rising. So, they stopped the Vanco for now since his levels of the drug were too high, until they get an idea of what the ENT wants to do next.
These are all issues that come up post transplant. I can not tell you how much relief we have felt having Elijah's transplant doctor working in the hospital for these past two weeks. She is thorough and listens to our input. This isn't about her. This is about Elijah..and she gets that 100%...with no ego getting in the way. She has been such a blessing to our family..and we are so thankful for her.
at 8:02 AM