The world of adenovirus is very perplexing. One week ago, Elijah's counts were very high..and it was determined that we needed to treat the virus with a tough drug. But, the results came back from Monday's lab test today and the counts were way down and he hadn't even started treatment! Since then, he has had two treatments already of the Cidofovir but now it is unclear if we will continue to treat it or not. It will depend on the latest lab results. The test must be sent out to a specialized lab and it takes quite awhile to get results back. This is part of the trouble with trying to treat something based on not-so-current lab results.
So, the great news is that the adenovirus appears to be at much safer levels and we may be able to stop the drug that could further damage his kidneys...I am beginning to wonder, though, how accurate the testing is considering the wild swing in numbers that we have been getting. Elijah's white blood count, hemoglobin, ANC and platelets are all running very low right now as well.
When Elijah is not feeling well, it is even more difficult for him to communicate his needs. He never says he isn't feeling well. He always replies "happy" if asked how he is feeling. But, I just know he is not feeling well. Some doctors understand that and respect what I have to say about how he is feeling..others are not so understanding. I know I must be his voice. But, sometimes, I get tired of practitioners contradicting me as if I don't know my son...I don't want to hear, "But, he looks good to me!" ever again...
But, God knows. God cares. And God will continue to care for us in beyond what we ever could have imagined. Thanks for your prayers!
