|Maisy dances to her own music..but her enthusiasm is contagious..|
|Isaac is enjoying having the whole family back together.|
|A little Karaoke and some dance moves..what a fun day!|
|Maisy loves princesses!!|
|Karoake at a Chrismtas party was so much fun!|
|Elijah is chunky and hairy because of the meds and TPN feedings he is on. He looks so good...and he is so happy to be home...|
We don't often have the chance to take a look from the outside into our own lives...we don't get a chance to peer in and see our life from a new perspective. Elijah's bone marrow transplant has given me this extraordinary chance.... Since the moment Elijah and I walked back into the front door of our lives, life has been beyond busy...Catching up with a life that is filled with children (with disabilities and such...) is potentially an overwhelming and joy dampening experience.
I am so busy. The paperwork threatens to drown me..The meetings and appointments that need to be made is mind boggling. The stabilizing that needs to be done to reestablish the rules and routines that we value has begun. The reorganizing of the whole house to get it back into smooth running order has taken away any spare moment we have had.
And then there is just the daily care of each of our children. Wow. I needed to step out of my life to see how much work it is to be us. Our kids need 24 hour care. Just because we need a nap in the middle of the day does not mean we are lazy or old. We have earned our wrinkles, our waistlines and the bags under our eyes. Elijah is doing well. Isaac has had a really rough few weeks and with every 2 hour nebs, little sleep has been had by all.
And the holidays are approaching. I ambitiously (crazy, I know now!) had Christmas cards printed up. Since I have not yet sent out most of the thank you cards from Kenna and Aaron's graduation party, I don't know what I was thinking. And then there are all of you who supported us with your prayers, your meals, your gifts of gas cards and so many other ways that you have showed your support...the cards have not been sent to you either. We are more grateful than you know...but there is just no time left in our days to get out a thank you card at this time in our lives.
And amidst all of what is going on in our lives, I have a new, renewed perspective...I am so incredibly, happily tired. Our days start early and end late. Many days, we don't even make it into our pajamas before we fall asleep at night. I am lucky to get a shower in every few days.
We are beginning to settle in. Soon, settling in to our routines will allow us to take a break every now and then. But, until then, we will treasure every moment we have caring for the family God has given us. We have been given a glimpse into our own lives..and I don't ever want to lose this perspective. We are so very blessed.....I love this life...there is no better place to be than right where God wants us to be...where each moment is His and our hearts are filled with gratitude. I love this renewed perspective...