We are home! The doctors agreed to let us administer the IV antibiotics at home and come into the clinic for labs and so we were discharged! Elijah was very excited to come home again. The sepsis responded very well to the IV antibiotics he was given. It was so good to have him treated with a few hours of the fever developing. I still can't believe he had a 104.9 temp and he was sitting up and playing his ipad and watching TV. I wish I could get in his head and find out what he is really feeling...there are so many mysteries with Elijah.
He handled this hospitalization so well...each time I get to spend such concentrated time with him, I get overwhelmed with the intensity of love I have for him. He is fragile...in so many ways and yet he doesn't know it. When ever I get a glimpse of his sensitive side, I am so touched. Glimpses like this are rare..and I often forget that even though he can't communicate his emotional side very well, that underneath it all..he is a very sensitive and affectionate little guy. He may not readily be able to handle physical touch, but he longs to make a connection with his family and friends. Every act of love and kindness shown to him (whether he responds back or not) are stored within the heart of this little boy. He wants to please. He wants to be loved. He has dreams and preferences. He is no different than any one of us.
I was taken aback by the progress he has made in his communication even since his last hospitalization. He was much better able to tell us how he was feeling and to ask for what he needed this time. He never ceases to amaze me. He touches so many people..he is pretty unforgettable. And each time someone takes the time to talk with Elijah who so easily could be ignored, it melts my heart..and again, I am overwhelmed with the love shown to him. It eases the fear I sometimes have that the world can be so harsh to those who have a disability.
Sepsis is such a serious condition, especially post transplant. I consider it nothing less than a miracle to see how well Elijah came through it. God continues to give us such precious gifts...more time with our special son...now that is a prayer answered yet again.
Thanks for your prayers!!!!